Welcome to the HLHS & Cardiac Transplant Resources
Please note that some information is dated (i.e. not current). Information, research, studies and other websites are not always up-to-date so be warned if you find something out-of-date. I give full credit for these links to our inspiration in setting up this site: Samson
Resources and support sites
- TCHIN Organization: The Children's Heart Information Network (a great group that we belong to)
- HLHS Information page: Great for FAQs, What to Ask, Important Terms
- Hearts of Hope: more definitions, explanations and links to resources
- American Heart Association: Another explanation of HLHS
- PediHeart - an explanation of HLHS, with links about the Norwood, Glenn & Fontan operations
- HLHS Blog: A compilation of links and articles about HLHS. Last updated May 2005.
Specific Information about the Surgeries
- Q&A: Hypoplastic Left Heart Syndrome, Frank Pigula, MD Associate in Cardiac Surgery, CHB
- Reconstructive Surgery for Hypoplastic Left Heart Syndrome: Some insight into the 3 stages of surgery.
- eMedicine: Details about the surgeries.
With pictures & movies:
- HeartCenter Online : HLHS - a great site with really helpful movies about how the heart works.
- JS Online: Detailed information about the three surgeries, WITH PICTURES
- KU Medical Center: A collection of videos and still frames of HLHS-related echocardiograms.
