About Isabelle

Isabelle was born on February 4th, 2005. She was diagnosed 2 days after birth with having a series of complex congenital heart defects: Atrial Septal Defect, Ventrical Septal Defect (considered DORV - Double-Outlet Right Ventrical), Mitral Stenosis and Hypoplastic Left Ventrical. The last two catapulted her into “HLHS” status, which required her to have the 3-stage Fontan surgery series (Norwood, Glenn and Fontan). She had her first surgery on March 8th, 2005, her second on August 17th, 2005 and her Fontan on August 25th, 2008. Due to an unfortunate chain of events, Isabelle’s heart could not tolerate the Fontan and so on October 11th, her Fontan was taken down. Afterwards, her prognosis wasn’t good. Fortunately, we were referred to St. Louis for Heart Transplant Evaluation.