Archive for October, 2009

Oct park cleaning date moved

Friday, October 9th, 2009

Hello friends and family,

We will NOT be cleaning South Park tomorrow (Oct 10). Instead we are moving the October date for the South Park cleaning to October 17th at 10am. I (Chris) will be out of town attending the funeral for our friend Gracie who passed away on 10/1 and (not to mention) it will be freezing cold tomorrow morning.

Hopefully the weather will be nicer on October 17th (or we’ll have to move the date again).

Thank you for your support!

Also, Isabelle and Elorah’s little brother Benjamin is doing great. He’s been home for several days now and he’s doing very well (as is his Mommy). Elorah has been taking good care of him and is very excited (except when he cries).

Lots of love and hugs to all,

Chris, Amanda, ^Isabelle^, Elorah and Ben

Lots of updates: some good, some sad

Friday, October 2nd, 2009

Hello friends,

We wanted to share some important updates to you today. We’ll jump right in. First of all, we send a big ‘thank you‘ for those that were able to attend the graveside memorial services. We really wanted to bring everyone together during the good weather and share some time of reflection. The headstone looks amazing and everyone enjoyed the balloon release, butterfly release, decorations, cookies and apple juice.

It was so nice to see such a great show of support, lot’s of warm faces. We leaned heavily on friends, family and the community and we are so grateful to be surrounded by such good people.

We understand that some could not make it due to the long distance so we’ll be posting some pictures soon.

The Good News:


We have a son! Baby Benjamin was born on 10/1 in Lawrence. Both he and mother are doing great. It’s the beginning of a new chapter in our lives.

The Sad News:


Dear friends of ours lost their daughter Gracie to heart failure on 10/1. Gracie was waiting for transplant and had her Fontan Procedure (she had HLHS like Isabelle) in April. Gracie was in and out of the hospital over the summer and she went in for a valve repair in August, which did not give her the relief she needed. She was listed for transplant, but struggled with complications of heart failure. Her parents took her home on Tuesday and she passed away peacefully just after midnight on 10/1. Her story can be read here: This loss really struck home with us because we went through it as well. We were not able to take Isabelle home and we are so glad Gracie got to spend some time at home before her passing.


Also, some friends of ours who have a girl who is struggling with a rare type of brain disorder. Her name is Rainbow (Rainy) and she has a website at: She recently suffered a major health scare when she was found in her room, having suffered a seizure.  It’s very hard to read about the constant pain this little angel goes through each day. Her parents are veterans at Children’s Mercy and the future is uncertain as to when relief will come - because treatment is not easy with brain disorders.


A couple (Sarah and Jared) we met through Rainy’s parents have been struggling with the loss of their son in February. They are selling bracelets to help raise funds to cover the funeral costs. His Mommy setup a Facebook group to help sell the bracelets. Go to: and read more. Natually, if you contact us we’ll get your however many bracelets you want. Please consider this and please consider passing this on.

Thanks again for helping us, supporting us and sharing time with us. We sincerely appreciate everything you’ve done for us. It is our goal to turn our loss into hope for others. The Isabelle Ellis HOPE Memorial Fund does just that. We are so happy to keep Isabelle’s spirit alive through this charity and we thank you for your support.

Warm regards, Chris, Amanda, ^Isabelle^, Elorah and Ben.