Archive for the ‘Law’ Category

New Legislation - Need Your Help

Monday, April 6th, 2009

Hello everyone!

There is a new piece of legislation entering Congress that will bring much needed focus and assistance to the world of Congenital Heart Disease (CHD). It is called “The Congenital Heart Futures Act”.

The goal of the Act is to coordinate Federal Congenital Heart Disease Research efforts and to improve Public Education and Awareness of CHD. It was introduced on March 17th, 2009 and desperately needs your support!

CHD has been struggling to find a national audience and attention. CHD’s affect nearly 1 in 100 babies and is the leading birth defect in our nation. Isabelle’s condition was rare and treatments for her condition have only been available for the past 20 years.¬†Federal funding and research is needed to help the fight against CHD and help find better treatments.

Here’s how you can help:

1. Visit this site to learn more about the Act:

2. Write a letter to your congressman/woman and let them know your support of this Act. (the sooner, the better)

3. Pass this on to as many people as you can. Get the word out!

4. Let us know you’ve helped our cause (send us an email or post on our guestbook). We’d love to hear from you!

Big heart hugs from us!

Chris, Amanda, ^Isabelle^ and Elorah